Resources
The links below are what we consider resources in dealing with Alex's condition. If you have a link to add do not hesitate to contact us.

Idea-League.org - The International Dravet Syndrome Epilepsy Action League, a volunteer-based nonprofit organization, was founded by parents of children with Dravet Syndrome to promote research and education for the early diagnosis, appropriate treatment, and cure of  Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.

 

ilae-epilepsy.org - The International League Against Epilepsy (ILAE) is the world’s preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by Epilepsy. Its mission is to provide the highest quality of care and well-being for those afflicted with the condition and other related seizure disorders.

 

My.epilepsy.com - Welcome to my.epilepsy.com, your place to read, write and live with epilepsy.

 

Ketogenic Diet- The Ketogenic diet .

 

site.matthewsfriends.org/ - The Ketogenic diet a brighter future for childhood epilepsy.

 

 

Links
The links below are other children with the same or similar conditions as Alex.

 

Hope For Sydney- Living on Faith Looking for a Miracle

 

Jake wiesenfeld - This site has been made by the parents and friends of Jake Austin Wiesenfeld, a Dutch Dravet-kid

 

Sarah Black - Sarah and her parents (Angela and Mark) were in the same training class as us in Ohio. Sarah also received a GoldenDoodle named Wonder. Sarah has Dravet like Alex and she is extremely cute. It was very nice to spend time with Angela and Mark but wish we had more time to discuss our very special children and to compare notes. They live in Texas.